Tuesday, February 5, 2008

Response to NYT article on ADA

In the New York Times Sunday Magazine's "Unintended Consequences" (Jan. 20, 2008), authors Stephen J. Dubner and Steven D. Levitt pose the argument that some “special-interest” laws, such as the American with Disabilities Act (ADA), may hurt the very people it intended to benefit.

Dubner and Levitt, who are also the authors of the best-selling book “Freakonomics” and a blog of the same name, give a qualitative and quantitative example supporting their case. First up: A Deaf patient from Los Angeles sought medical advice and treatment for her knee from Dr. Andrew Brooks. She asked the doctor to hire and pay for a sign language interpreter, and told him that she was well within her rights to do so under the ADA.

Brooks agreed to pay, but surmised that he'd lose money by treating the patient: "As it turned out, an interpreter would cost $120 an hour, with a two-hour minimum, and the expense wasn’t covered by insurance...That would mean laying out $240 to conduct an exam for which the woman’s insurance company would pay him $58 — a loss of more than $180 even before accounting for taxes and overhead."

I am also Deaf. Like the Deaf patient, I value my independence. During undergraduate and graduate school I asked for and got an interpreter for my larger classes and the college paid for it. Universities must do so under Section 504 of the ADA because nearly all post-secondary institutions receive federal funds. But Section 504 explicity says: "Although the student must request necessary accommodations, the institution must demonstrate that the accommodations it provides are effective."

In other words, a student may request a number of accommodations, but the institution only need provide accommodations that result in effective participation. So, for my smaller classes I chose to read lips. I even finangled a way for a classmate to receive extra credit for taking notes for me. And I used technology as much as I could to help me get through the every day.

My advice to the Deaf patient would have been to meet the doctor halfway. She might have helped to pay for an interpreter, or used an interpreter for the first couple of sessions. She might have had him write notes on his pad (Brooks did suggest this solution, but she refused.) She might have brought a hearing friend or relative with her. Even better, she might have used technology such as Instant Messaging (a universally accepted form of communication for both deaf and hearing people.) The good doctor on his Blackberry and she on her Sidekick. Fun, no?

There is one solution that would have worked perfectly, if the Federal Communications Commission (FCC) would consider funding it. It's called Video Remote Interpreting (VRI). On this type of call, both the deaf and hearing parties can be in the same room and a sign-language interpreter will sign/translate from a remote location on a Videophone. It's currently offered as a paid service by Sorenson Communications, but it's cheaper than hiring an interpreter on site.

Sorenson does offer a free, FCC-funded solution called Video Relay Service (VRS). In this scenario, the doctor dials 888-FAST-VRS and connects to a sign-language operator who calls the patient on a Videophone. The doctor speaks to the operator, who in turn signs to the patient....the patient signs back to the interpreter....and the interpreter speaks her words to the doctor.

Several years ago I met the CEO, Jim Sorenson, when I was an Assistive Technology reporter at BusinessWeek. He's a smart and well-intentioned guy. I tried out the Videophone at the Lexington School for the Deaf in Queens, New York. I also sat in one of their new Videophone booths that is designed for public spaces, like universities and airports. The Videophone booth looks like one of those $3 photo booths at Coney Island -- sparse, but private.

At the end of the day, the Deaf patient's attempt to get her needs fulfilled (her way and only her way) is at odds with the spirit of the ADA and its "reasonable accommodation" premise. These types of situations could backfire and hurt others who are disabled, which is the argument that Levitt and Dubner make.

In the end, the Deaf patient didn't need the knee surgery. But I can't help but wonder if the doctor felt ambushed. Would he ever accept a Deaf (or disabled) patient again?


Dubner and Levitt’s next example from their article cites findings from two economists who say the ADA has had a negative effect on the employment of the disabled. “Employers, concerned that they wouldn’t be able to discipline or fire disabled workers who happened to be incompetent, apparently avoided hiring them in the first place,” Dubner and Levitt said.

I think Dubner and Levitt make a good case, but I am going to need to do some of my own research. I believe that employers are not as concerned about incompetence (a complete inability to function) as they are about the disabled employee’s ability to consistently perform a job to par.

That's because more of Corporate America has adopted Six Sigma, performance management systems and merit-based pool bonus structures. The result is that one person's performance is intrinsically tied to his or her team's output. Much like nobody wanted the handicapped kid on their Dodge Ball team, it has become harder for the disabled to be given a chance to prove themselves because the stakes are higher for everyone involved. Simply put, it's a trust issue.

That's why it is so pressing that people with disabilities go above and beyond to educate themselves and their employers about their disability. They must also capitalize on technological advances, such as video relay, text readers and speech applications, that will help them dispel notions that they can't pull their own weight for the team. What might look like incompetence is really just ineffectiveness -- because the person with a disability hasn't asked for or been given the right tools.

All in all, getting to par is possible and doable. But it takes chutzpah on behalf of the disabled employee, and education and understanding from the able-bodied boss that given the right accommodations, his employee can succeed.

The economists’ results were published in the Journal of Political Economy in 2001 -- nine years after the ADA was enacted -- but the data could be older than 2001. Advances in technology today and tomorrow will continue to help build the bridge between the able-bodied and people with disabilities in the workplace.

In summary, everyone should rise to meet the "reasonable accommodations" of the disabled. But the disabled should also take responsibility for ensuring their requests will be effective, are mutually accommodating and don't overstep the boundaries of the law's good intentions.

Sunday, February 3, 2008

The Great Deaf Pepsi Super Bowl Ad

Welcome to Profoundly Yours. This is my very first post, so exciting! If you haven't read my profile already, here's a little about me. My name is Suzanne and I am a former journalist. I am also profoundly deaf. Hence, this blog is called Profoundly Yours.

I've accomplished much despite my hearing loss. Got an undergraduate degree (in Communications), a Master's (in Journalism), and then worked at BusinessWeek (you may have seen my column, Assistive Technology?) and the Wall Street Journal. I went on to write speeches at American Express and direct business communications for MasterCard.

Along the way (exactly six years ago) I received a cochlear implant. For the first time, I could use the telephone, tune into music, hear the rain tap-dancing on the street, the microwave's beep, the subway's windy whirl, and so much more. And while silence surely is golden, there's something to say for living life in surround sound. Plus, my eyes welcomed the rest. ;)

My implant has changed my life. For starters, it has made me "better, faster, stronger" (Theme from the Bionic Man!) as far as hearing goes. But more importantly, and to the point of why I'm writing today, it is an excellent example of how technology can help to bridge, or even eradicate, the inequity endured by people with disabilities in both the lifespace and workspace.

Today I'm returning to my roots as a writer and advocate for persons with disabilities. In reality, we are all ABLE -- some of us just differently so. There's a lot to be learned in this space, and I'm a big believer that technology (powered by human ingenuity and will) can take us further, faster -- just like it did for Bionic Man (and Woman.) So please tune in to Profoundly Yours for regular news and commentary.


It is the day of the Super Bowl game and I just read that there will be a Super Bowl Pepsi ad called Bob's House featuring deaf fans.

I think it's about time that people with disabilities are represented more thoughtfully in sports or other mainstream activities - whether as players or spectators/fans.
This is a good ad for many reasons: One of the characters in the ad actually works at Pepsico in New York, and they run a support network for people with disabilities called Enable. (I wish we had that at my company, which is just down the street from Pepsico.)
Also, in the ad the deaf characters are buddies who are trying to find their friend Bob's house on a dark street, but they forget which house is his. They banter (er, spat) with each other using sign language. This kind of candidness shows that Deaf people are like everyone else. The ad doesn't really even depend on their deafness for its humor; it would have been a funny ad if the two grown men, fighting over who lost the directions to Bob's House, were deaf or not.
But all is not lost, because the buddies use what I like to call "the pure ingenuity and innovation of the disabled." They honked their horn on Bob's street until everyone came outside to see what all the commotion was about -- except Bob. By process of elimination, they found their friend and were off to the games.
Even if you weren't deaf you could view the ad and understand the sign language because the ad used open captions. I wish all the Super Bowl ads had been captioned. Why is it that not all Super Bowl commercials are captioned? Here we are at the Oscars of advertising, in the final stretches of football history, and advertisers aren't putting out all the stops. Pepsi took a great leap tonight and I commend them for it.
Others couldn't even bother to CAP their commercials. (It costs extra, and the Federal Communications Commission doesn't require captions until Prime Time: 8pm to 11pm). I wonder it its because the game took place in Phoenix, which means the game started at 4pm, so they essentially found a loophole.
Not good business, my friends. Besides, even hearing people who were watching the game at a bar would have benefitted from the CAPS!! I am going to research this. Stay tuned.
PS: Did you know a Deaf football player at Galludet University in Washington invented the huddle? He didn't want the other team to see his "signing" as he delegated plays. The huddle turned out to be a solution that is used throughout the NFL today.